Learn more about The Children’s Heart Foundation
Founded in 1996, The Children’s Heart Foundation was the only organization created to exclusively fund congenital heart defect research. Through 2012, the Children’s Heart Foundation has contributed an astounding $5.3 million toward 52 revolutionary congenital heart defect (CHD) research studies in the United States and Canada. Amazingly, The Children’s Heart Foundation began with the joyful life and premature death of a sweet 8-year-old boy named Sam Peterson.
Sam, the son of Betsy and Steve Peterson, was born with complex heart defects and died on Jan. 3, 1995 at the age of eight due to multiple organ failure brought on by a sudden heart-related collapse
Doctors have never understood why Sam was born with complex heart defects or why he collapsed so suddenly. During his short life, Sam proved that modern technology and a love for life could conquer congenital heart defects, if only for awhile. If Sam were born 20 years earlier, he would not have lived a day after his birth. It is only through research that a child like Sam had the chance to survive and make such a lasting impact on those whose lives he touched.
With the generous support of friends, colleagues and leading medical professionals, Betsy and Steve bravely responded to their loss by creating The Children’s Heart Foundation (CHF). As the country’s leading organization solely committed to congenital heart defect research funding, The Chidren’s Heart Foundation dedicates itself to bringing health, hope and happiness to children and families impacted by congenital heart defects.
While this dedication is focused on funding research, The Children’s Heart Foundation has also been able to offer parent and public awareness resources. The first of these resources that The Children’s Heart Foundation created was the comprehensive patient and parent resource book titled It’s My Heart. It’s My Heart was developed over a number of years by a dedicated group of doctors, nurses and parents in a collaborative effort spearheaded by The Children’s Heart Foundation. In plain, understandable language It’s My Heart provides descriptions of the types of congenital heart defects and acquired pediatric heart conditions your child may face. Along with explanations of the various tests, surgical procedures, and treatments for CHD’s, this book also contains helpful diagrams, a glossary of medical terms, and much, much more.
The second resource The Children’s Heart Foundation created was the DVD documentary titled The Heart of the Matter. CHF teamed up with Northwestern University Dance Marathon 2011 and the American College of Cardiology to create what is considered by experts to be the most comprehensive program to date to provide the public with a first-hand look at the world’s #1 birth defect – congenital heart defects. Hosted by Golden Globe nominated actor Chris O’Donnell of Winnetka, IL and television’s hit show, NCIS-Los Angeles, The Heart of the Matter focuses on all aspects of congenital heart disease from infancy through adulthood.
Since it’s original formation in 1996, CHF has grown to include the US local/regional chapters noted below. Please take a moment to visit the website of a local chapter near you to see what is happening in your local CHF and CHD community. If you are interested in events in your area or if you are interested in starting a local chapter, please send an email to yor local chapter and/or to email@example.com
for more information.
2950 Jefferson Avenue
Davenport, IA 52803
Swathmore, PA 19081
New York Chapter
Round Rock, TX 78683